Derbyshire Parent Care Voice does not endorse any specific products, websites or information, however we operate this page to share information that parents and carers send to us that maybe of interest to you.
STAMP and STOMP
In December, the CYP Learning Disability team, launched STAMP (Supporting Treatment and Appropriate Medication in Paediatrics) initiative at the Royal College. The launch was a success, and we heard from two families, who shared their experiences about being prescribed psychotropic medication, to the detriment of their loved ones. We also heard from Sarah and Owen Thomas, who talked about receiving medication at the right time and for the right reasons, with a positive impact on Owen’s quality of life.
Please follow the link here for more information and also see the attached leaflet below. We are hoping to get the messages across and contribute to improving the lives of Children and Young People with Autism and/or a Learning Disability, as research shows that they are more likely to be given medication, than any other children and young people.
For the latest Disabled Living’s E Newsletter please click here
Recognising Dyslexia – A Visual Aid
Derbyshire Carers Association
Carers wanted to take part in a study looking at the impact of caring.
Researchers from the Psychology Department at the University of Derby are working with Derbyshire Carers Association on several projects to better support carers to effectively manage the multiple demands of caring.
We would like to invite Carers to come and take part in the study looking at the impact of caring and how Carers build resilience.
Researchers from the University of Derby are happy to meet Carers in their own homes, at the University or at a DCA Centre in Derby, Ripley, New Mills or Chesterfield.
This will be a chat about how Carers build resilience and cope with their caring responsibilities.
All research helps DCA as well as other services in planning future support and protecting Carers services.
If you know of any Carers in Derbyshire that you think would like to take part then please pass on this information.
For more information or to volunteer to take part please call Angela Bradley at Derbyshire Carers Association on 01773 833833
For the latest Newsletter from Derbyshire Carers Association please click the link below.
Building Better Opportunities
is a support programme for unemployed or economically inactive individuals aged 16+ (or 15 if NEET) that is designed to prevent social exclusion and to remove barriers to employment. It has 3 complimentary but separate strands:
Please click on the links above for more information and see the images below.
Meet the Service – SSSEN
Who are we?
The Support Service for Special Educational Needs (SSSEN) is a Derbyshire Local Authority Service which aims to ensure the inclusion and achievement of children and young people with special educational needs and build expertise and capacity within schools in Derbyshire.
The Service is led by Belinda James, Head of Service, and made up of 7 teams each with an Area Manager, Senior Teacher(s) and specialist SEN Support Teachers.
What do we do?
We work with children in maintained nurseries and infant, junior and primary schools with Special Educational Needs and Disabilities (SEND) as part of the provision in their EHC, GRIP or ETAEYS Plan. Support from SSSEN is agreed when the child has significant barriers to learning and complex learning needs that meet SSSEN criteria.
- Assess your child to find out what help he/she may need
- Work together with you to develop ideas for supporting your child
- Agree targets with you and school staff for your child to work towards
- Work with your child individually, within a small group or in class in mainstream nursery and primary schools
- Provide teaching that is ‘additional to or different from’ their usual class work
- Keep records of your child’s progress
- Write a report for the Review of your child’s personalised plan and attend the meeting
- Provide specialist teaching for your child on at least a weekly basis
- Take part in regular planning meetings with you and other staff who work with your child
- Offer advice and training to support school staff in meeting the needs of your child
A Successful Service
We strive to maintain high levels of knowledge and expertise throughout the service and many teachers in the service hold further qualifications in SEN. We aim to work in partnership with schools, families and children to provide the best support for the children we work with. Each year we carefully analyse the progress the children we support are making and the children we support have, on average, made outstanding progress for the last three years.
Every year we ask families, children and schools for feedback on the quality of the service so we can continue to provide high quality support. Last year the feedback from all of these groups was highly positive.
Want to know more?
You can find out more about SSSEN on the Derbyshire Local Offer at
What is a Multi-Element Plan
DIASS have kindly passed on the following information.
Provision available to schools in Derbyshire to help avoid fixed-term and permanent exclusions.
Multi-element Plan (MEP) or Well-being Plan (WP): chaired by EPs, initiated by school.
Multi-element Behaviour Plan (MEBP): chaired by a member of the Behaviour Support Service, initiated by school.
MEP’s Fact Sheet – Viewing compatiable with reading on a computer or device
MEP Printable Fact Sheet – Printable version double sided
AFASIC Self Advocacy
Last year we were very lucky in that AFASIC recieved Lottery funding to provide free Self Advocacy training courses. We decided as a reminder to upload the presentations carried out during those training sessions and a link to the AFASIC website. We hope you find it all useful.
AFASIC Website – Find out more about what they do to help families.
The Charity can offer a number of different services:
Emergency Equipment Loan Service
Play Therapy Pods
Nurse Helpline for a chat on your down days, to answer application queries and signpost (for starters)
Funding for pieces of equipment
Newlifeable – you can purchase specialist equipment 50% of new prices! Newlifeable
Search their website for all what they offer and how they get funding.
Derbyshire Information Advice & Support Service
TEL: 01629 533668
(formerly Derbyshire Parent Partnership)
They also now have their own Facebook page, visit it here DIASS Facebook Page
Contact A Family
Social Care Services leaflet
Derbyshire Constabulary has a telephone number that can be
used when you need the police, and it is not an emergency.
This local rate number is especially for people who have a
disability or illness that affects their telephone use, or who
may become confused or agitated during prolonged or
For example, if you want to ask a question, get some
information or want to report a crime such as reporting a
Hate Crime, lost property or criminal damage.
Care Card Service
or for further options visit
Our AGM and Empowering Parents event was on Friday 18th March 2016, several professionals gave presentations and information, Please see the links before for copies of these
We will be putting together all the information, and feedback you gave the forum on the day and will update this section with that as soon as possible. Thank you to everyone who attended the meeting.
Personalisation and Personal Budgets information.
At the forums in January we are talking about personal budgets, part of this we will talk about personalisation, some of the information packs had filled in examples of personlisation toolkit, these are available on Derbyshire Local Offer website as blanks that you can download and edit. The link to the page is below:
To help you fill them in, there are some completed examples in the links below, however as these are about your individual child/young person, some parts may not be applicable and some parts might want adding too, Remember is about your child/young person and your family, we are all different.
The makers of Sesame Street have developed a website specifically aimed at families with children on the autistic spectrum
Family Fund Grants
If you are raising a disabled/seriously ill child/young adult (aged up to 17 years), you may be eligible to apply for a grant from the Family Fund
GP Health Checks for over 14 year olds
We received the following information from Contact a Family that may be on interest to some families and young people . For young people over the age of 14 years, they are able to access a yearly check up with the GP if they have a learning disability. Evidence shows that young people with a learning disability often have difficulties accessing health services and face inequalities in the service they receive. Some steps have been taken to improve the situation, such as the introduction of annual health checks for those with Learning Disabilities, but one of the key challenges is that many of this group are not actually known to their local GP. Increasing the number of young people with learning Disabilities who are on their GP’s LD Register, will help to ensure that better and more person centred health care will be offered to this group. Please see the link here for more details GP_lD_Register_Letter
http://www.sendpathfinder.co.uk – the website that will tell you all you need to know about SEN reform.
http://www.ipsea.org.uk – IPSEA (Independent Parental Special Education Advice) is a registered charity offering free and independent advice to parents of children with special educational needs in England and Wales on:
- local authorities’ legal duties to assess and provide for children with special educational needs;
- exclusions of children with special needs/disabilities;
- actions or inaction by local authorities and/or schools which discriminate against children with disabilities.
http://www.councilfordisabledchildren.org.uk – The Council for Disabled Children (CDC) is the umbrella body for the disabled children’s sector in England, with links to other UK nations. It is the only national body that brings together the diverse range of organisations that work with and for disabled children to support the development and implementation of policy and practice. Its work impacts on more than 800,000 disabled children and their families.
http://www.cafamily.org.uk/ – Contact a Family is the only national charity that exists to support the families of disabled children whatever their condition or disability. Its vision is that families with disabled children are empowered to live the lives they want and achieve their full potential, for themselves, for the communities they live in, and for society. It’s offers support, information and advice to more than 340,000 families each year and campaigns for families to receive a better deal. Subscribe to the Contact a Family and NNPCF parent carer participation bulletin.
http://www.nnpcf.org.uk/ – The aim of the National Network of Parent Carer Forums is to ensure that good practice, knowledge and shared expertise about parent participation continues to grow and strengthen, and to develop a cohesive and coherent structure to sustain and develop the effectiveness of parent carer forums across England, individually and as a collective voice.
Everybody Hurts is an organisation that support anyone affected by child to parent abuse.
The web address is: www.everybodyhurts-derbyshire.org